May 24, 2022

It Shouldn’t Have Come To Brain Surgery

It Shouldn’t Have Come To Brain Surgery

Maureen Forman started experiencing strange headaches, migraines, and paresthesia. One day, while she was on a hike with her son, she suddenly couldn’t move and couldn’t talk properly.

Maureen Foreman is an owner of an equestrian center and also in corporate America, with a challenging career that brings her to LA from Georgia, she suddenly found herself so ill and undiagnosable for three years. As the bills accrued, she realized she had to keep up with her corporate job. Maureen is one of many who has Lyme and has been misdiagnosed a lot of times. Her story resonates with the story of many Lyme Disease patients.

In this episode, Maureen shares with us her journey with Lyme Disease. How initially like other Lyme Disease patients she was often misdiagnosed, from being diagnosed with a brain tumor, she went through different treatments that didn’t properly address her condition.

Join me as we listen to her story and learn why we need to be more aware and why things need to change around testing for Lyme Disease.

In this episode:

[04:04] Maureen started experiencing strange headaches, migraines, and paresthesia.

[04:31] Her symptoms wouldn’t let her groom the horses or even ride them and she couldn’t even keep her feet in the stirrups.

[06:43] In June 2016, while hiking with her son and her friend’s son she suddenly couldn’t move and was experiencing slurred speech. 

[08:02] She was taken to the hospital and was initially diagnosed with a stroke, but after an MRI, they found a tumor in her brain.

[10:21] The surgeon did a craniotomy on Maureen and unfortunately, she also had a blood clot, but she also felt like something else was wrong.

[12:22] They eventually found out that there was no tumor, they tested Maureen for other diseases such as MS, Herpes, and Encephalitis but they never considered Lyme.

[13:35] Three years prior, Maureen was bitten by a tick and she was treated with antibiotics.

[14:33] Recovering from all the brain issues and damages, she came out of the hospital learning how to write and speak again.

[15:28] Following another misdiagnosis, she met Dana Parish, the co-author of Chronic and she told Maureen she might have Lyme.

[18:20] After having a bunch of tests to determine if she has Lyme, she ended up with Dr. Erica Layman, a board member for Lyme Disease and she discovered that not only did Maureen have Lyme but also Ehrlichiosis and other tickborne illnesses.

[19:07] Due to blood clotting issues, she was not allowed to fly and go back home to Georgia. 

[19:56] Maureen had blood transfusions because of bad anemia.

[21:37] With her coagulation issues and Lyme Disease, she kept feeling very sick.

[24:16] Despite her health challenges, she learned to take care of herself. 

[27:04] When she went back to Georgia, she got reinfected by another tick bite.

[28:44]  The new normal is to get the tick that bit you then go to your doctor and get started up immediately on antibiotics. Send that tick to SUNY, where they can test the ticks for free.

[32:48] Maureen got mad at being misdirected by the physicians, especially infectious doctors but she’s also grateful for the experience, she can now stand up for herself.

[37:34] You don't know how bad it is until you’re out of it. - Maureen

[38:31] She learned not to open up to everybody about her Lyme condition, because when you do not look sick, some people misunderstand you. 

[40:04] With Lyme, Wendy and Maureen have problems losing weight. 

[44:36] The worst thing that Lyme did to Maureen is it impacted her son heavily, and the best thing that happened is finding support from a community of women.

[46:29] Life insurance is great to have in case something happens.

[55:13] Animals get diagnosed with Lyme more readily diagnosed than humans.

[56:29] If you suspect you have Lyme or have been bitten by a tick, find a Lyme literate physician, don’t waste time, and get tested.

[01:00:30] Though she can no longer ride her horses, Maureen still gets to take care of her horse, Jesse, aside from her family, her animals keep her going.

About Maureen Forman

Maureen Forman is an owner of an equestrian center and also in corporate America, with a challenging career that brings her to LA from Georgia. She found herself so ill and undiagnosable for three years. As the bills accrued, she realized she had to keep up with her corporate job. Maureen is one of many who has Lyme and has been misdiagnosed a lot of times. Her story resonates with the story of many Lyme Disease patients.

Resources:

My experience, strength, and hope: The BEST care team!

Infectious Disease doctors are limited by insurance regulations and outdated and erroneous CDC standards for treatment. I deeply appreciate Dr. Feldman at Cedars for explaining the challenges with approved CDC/Insurance regulated treatment, the inadequate testing for tick-borne illness, and the poor CDC standards when it comes to Lyme. 

Lyme:

Lyme literate MD

Dr. Erica Lehman, Beverly Hills, California

https://www.prohealthgroupinc.com/resources

Neurology

Dr. Ron Andiman, Beverly Hills, California

https://bio.cedars-sinai.org/andimanr/index.html

Infectious Disease

Dr. Randy Feldman, Los Angeles, California

https://bio.cedars-sinai.org/feldmanr/index.html

Hematology

Dr. Becky Miller, Los Angeles, California

https://find-a-doctor.cedars-sinai.edu/provider/1619050556-becky-j--miller

Rheumatology

Dr. Mihaela Taylor, Santa Monica, California

https://www.uclahealth.org/providers/mihaela-taylor

Internist

Dr. Ryan Aronin, Los Angeles, California

https://www.uclahealth.org/providers/ryan-aronin

Reading:

CHRONIC: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again

https://stevenphillipsmd.com/the-book/

On her Website:

www.LA2GA.com

www.WillowDellFarms.com

Join My Second Wind Facebook Group